Mother and Son

SCN8A

Family Networks

We are progressively developing networks of families —both regional and genetic—around the world, coming together to learn about genetics and contribute to accelerating treatments for our children.

These groups are run by two SCN8A parents: Dr. Michael Hammer, father to Shay and discoverer of SCN8A as pathogenic for epilepsy in humans in 2012 and Gabrielle Conecker, mother to Elliott and Co-Founder of Wishes for Elliott.

The mission of our partnership is to bring families together with a wide range of stakeholders to better understand the genetics behind SCN8A and to collaborate towards a cure.

Existing Networks

We meet the last Saturday evening of every month - 6PM EST

Join the 
Southeast group!

  • Facebook
  • Twitter
We meet the
Second Tuesday
of each month at 6pm EST

Join the 
Upper Midwest group!

  • Facebook
  • Twitter
We meet the first Sunday of each month at 2pm PST

Join the 
West Coast US

group!

  • Facebook
  • Twitter
We meet the second Wednesday of the month at
5:30PM MT
  • Facebook
  • Twitter
We meet the first Wednesday of every month at 5pm EST
  • Facebook
  • Twitter
We meet the Second Saturday of every month - 4pm EST (5pm on 3/13)

Join the Northeast group, which includes Ottowa and Québec.

  • Facebook
  • Twitter
We meet on the third Thursday of every month at 6pm CT

Join the 
Lower Midwest group!

  • Facebook
  • Twitter
Date coming soon!
  • Facebook
  • Twitter
We meet the second Sunday of each month at 1pm EST
  • Facebook
  • Twitter
We meet the third Sunday of each month at 4pm EST
  • Facebook
  • Twitter
Fast Inactivation Group.
 
Meeting time
coming soon!
  • Facebook
  • Twitter

Part of our mission is to learn as much about SCN8A as we can. Among other things, we use these meetings to learn from you.

Much of what we discuss comes from what we've learned from the dedicated SCN8A Registry operated by Dr. Michael Hammer. The data from the registry is playing a critical role in helping bring new SCN8A targeted treatments to our children.

The more you share, the more we learn!

Be In Touch!
We'd love to hear from you. Do you want to join an existing network? Start a new one? Have a question?

FORM A NEW NETWORK

Join An existing network

for more info, email gabi@wishesforelliott.com

TELL

US

what you want to learn about SCN8A

 

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