Events and Updates

Ways You Can Help Elliott's Wishes for Answers Com...

December 6, 2014

In the last 30 days you have helped catapult our campaign into a new league. First there was the outpouring of support and heartwarming wishes from so...

Wishes for Elliott Joins the National #GivingTuesd...

November 19, 2014

Wishes for Elliott has joined #GivingTuesday, a first of its a kind effort to transform how people think about, talk about and participate in the givi...

You All Made Elliott’s Birthday a Joyous and Movin...

November 18, 2014

There was a virtual avalanche of support in response to our announcement of Elliott’s second birthday this month. It was deeply moving on many levels.
...

Wishes for Elliott's 2nd Birthday

November 2, 2014

,

Gabi Conecker

It’s hard to believe it but it is already November, which means that Elliott turns 2 this month.  In all honesty, there were times that we weren’t sur...

Let the Research begin!

September 16, 2014

While still somewhat short of the total funds required to fully cover the costs of the Research Coordinator position at Children’s, your phenomenal fu...

Extraordinary Support From Friends and Followers M...

August 20, 2014

Less than two weeks ago we first publicized our need to raise $60,000 by the end of September. This was necessary as we had just learned that progress...

Help Needed to Raise Substantial Share of Annual G...

August 7, 2014

,

Wishes for Elliott Team

The best result of learning about Elliott’s rare genetic mutation is that state of the art research holds promise for improving the understanding and...

First Collaborative Award to Support SCN8A Researc...

July 26, 2015

SPEAK - the SNC8A Partnership for Epilepsy Awareness and Knowledge – a collaboration of three family-run organizations: The Cute Syndrome Foundation...

First SCN8A Conference Exceeds All Expectations

April 21, 2015

One of primary objectives of Wishes for Elliott, over the last year, has been to bring together the experts working on various SCN8A efforts across th...

NPR Article: Families Isolated By Rare Genetic Con...

June 6, 2016

Upon reading the NPR article, Families Isolated by Rare Genetic Conditions Find New Ways to Reach Out, Jena Crable commented on their Facebook link fo...

Two New SCN8A Research Efforts Begun Thanks to Wis...

June 20, 2016

Wishes for Elliott is so very proud and excited to announce the initiation of TWO promising new research efforts seeking to unravel the many mysteries...

Innovative Registry for Children with SCN8A Launch...

October 5, 2016

An innovative scn8a Registry, so essential to the future of all research on scn8a, is now live on the SCN8A Community Website (www.scn8a.net).  

 

...

The Magic and Power of Our SCN8A Family

November 10, 2016

,

Credit to Merily Delgado for compiling and thanks to families for sharing this collection of photos.

Many of you have come to understand the enormous challenges Elliott must confront daily – even moment to moment – due to his SCN8A genetic mutation an...

Milken Institute “Best Practice Guide for Funding...

November 28, 2016

The Milken Institute, Center for Strategic Philanthropy, provides leadership across the entire health spectrum to advance more effective philanthropy....

2019 Wishes for Elliott - AES Grantee

October 10, 2019

Ranmal Samarasinghe MD PhD at UCLA,under the mentorship of Dr. Bennett Novitch (with additional collaborative/mentorship relationships with Drs Istvan...

Please reload

 

© 2020 by Wishes for Elliott

 

A special thank you to WIX for hosting this site.

  • Wix Facebook page
  • Wix Twitter page
This site was designed with the
.com
website builder. Create your website today.
Start Now