Events and Updates

First Collaborative Award to Support SCN8A Researc...
July 26, 2015
SPEAK - the SNC8A Partnership for Epilepsy Awareness and Knowledge – a collaboration of three family-run organizations: The Cute Syndrome Foundation, ...

NPR Article: Families Isolated By Rare Genetic Con...
June 6, 2016
Upon reading the NPR article, Families Isolated by Rare Genetic Conditions Find New Ways to Reach Out, Jena Crable commented on their Facebook link fo...

Innovative Registry for Children with SCN8A Launch...
October 5, 2016
An innovative scn8a Registry, so essential to the future of all research on scn8a, is now live on the SCN8A Community Website (www.scn8a.net).
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The Magic and Power of Our SCN8A Family
November 10, 2016
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Credit to Merily Delgado for compiling and thanks to families for sharing this collection of photos.
Many of you have come to understand the enormous challenges Elliott must confront daily – even moment to moment – due to his SCN8A genetic mutation an...