rarediseaseday | wishesforelliott

Report from Rare Disease Week in D.C.

It has been an amazing week to come together with rare disease advocates from 48 states representing over 160 rare disease to advocate...

Launch of SCN8A Clinicians’ Network

Brief Overview of Statement to the FDA: SCN8A Families Support for New Disease Altering Medications

Wishes for Elliott Continues to Forge Breakthroughs in the Science of SCN8A

Small Family Foundation Partners with University of Michigan to Develop SCN8A Mouse Models of Most S

Report from Rare Disease Week in D.C.

A Countdown of Seven Actions to Support SCN8A Children and Families

12 Steps to Becoming an Informed Supporter for SCN8A Children

Rare Genetic Epilepsy Spurs Families into Action

Increasing Epilepsy & SCN8A Awareness

Our Tale of Progress through Partnerships