Launch of SCN8A Clinicians’ Network
A huge step for our community - bringing together a group of brilliant clinicians to develop treatment guidelines for SCN8A-related epilepsy
Brief Overview of Statement to the FDA: SCN8A Families Support for New Disease Altering Medications
Sharing the SCN8A lived experience with the Food and Drug Administration to stress the urgent need for targeted treatments.
Helping families find the critical information and support they need
MISSION Serve the growing community of families who have children with severe developmental and epileptic ecnephlaopathies (DEEs) with...
2019 Wishes for Elliott - AES Grantee
General summary of this project: Epilepsy, a disease defined by recurrent seizures, is a severe neurological disorder that affects...
Exploration of Synergies Across Sodium Channelopathies Yields New Collaboration and Research Strateg
We were pleased to join with leaders of advocates for SCN1A (Dravet) and SCN2A to bring leading scientists together to accelerate...
New Hope!
It's just incredible! It’s been just 4½ years since we started Wishes for Elliott. And today, we are ecstatic to report that with the...
Multi-Disciplinary SCN8A Epilepsy Clinic Updates
Dear SCN8A friends and families, We are pleased to openly share the emerging details for the clinic for SCN8A children being offered...
Wishes for Elliott Continues to Forge Breakthroughs in the Science of SCN8A
Today Wishes for Elliott is proud to announce agreements with two leading institutions that will continue to help advance the science of...
Small Family Foundation Partners with University of Michigan to Develop SCN8A Mouse Models of Most S
Mutations of sodium channel SCN8A, resulting in an epileptic encephalopathy, generate a very wide spectrum of impacts on affected...
