Our Recent Submission to the Food & Drug Administration in Support of SCN8A Treatments

FDA Response:

"The stories that were conveyed, including your own, Dr. Hammer’s, and the other families who shared their comments, are deeply moving, and I am tremendously grateful for your sharing them.  In addition, the work your organization has done to advocate in a scientifically-driven way for advancements in the treatment of SCN8A-related epilepsy is extremely commendable."
 

-- Nick Kozauer, Director at the Food and Drug Administration

WHAT
IS
SCN8A EPILEPSY?

The Faces of SCN8A

See how our early investigator grantees, in conjunction with the American Epilepsy Society, have helped advance the understanding of SCN8A and other rare epilepsies.

Partnerships for Progress

Wishes for Elliott has always understood the value of and sought out collaboration. We have an extensive list of groups we work closely with to make a difference in the lives of those with SCN8A and other rare epilepsies. A few of these key partnerships include our work with the American Epilepsy Society, National Institutes of Health, the Epilepsy Leadership Council, the Rare Epilepsy Network, a wide range of other rare epilepsy groups, University researchers, clinicians and beyond. 
Read more here

 

Wishes for Elliott is a family-based, non-profit organization dedicated to supporting research to improve the lives and prognosis of children struggling with SCN8A mutations and similar rare epilepsies.

EXCITING NEWS!

Gabi, President and Co-Founder of Wishes for Elliott, was elected Co-Chair of the Epilepsy Leadership Council for a two year term, in 2020!

Resources for

SCN8A Families

 

Includes:

- Q&A

- Where to Get Help

- Resources

Hear why Gabi
and John decided
to launch
Wishes for Elliott

 

© 2020 by Wishes for Elliott

 

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